Beyond the Flare – Breaking the Invisible Burden

Gemma Jones, one of our Business Account Managers, recently attended an industry conference on eczema and reflects on the day and the links made by Allergy UK in the interests of people living with allergy. 

We were told that Atopic Eczema remains a major public health challenge and presented with some findings from GP and dermatologist Dr George Moncrieff:* 

The prevalence of atopic eczema remains extremely high across the population, particularly in children. 

Key statistics included: 

  • Around 30% of four-year-olds are affected by eczema 
  • Between 11% and 20% of school-aged children live with the condition 
  • Approximately 5% to 10% of adults are affected 
  • Around 30% of infants present to primary care with eczema during their first year of life. 

The speakers described these figures as being at “epidemic levels”, underlining the scale of the condition and the ongoing demand it places on healthcare services and families. 

We also heard how the impact extends far beyond the skin with one of the strongest messages being that eczema should not be viewed solely as a dermatological condition. 

Survey data presented from adults living with eczema demonstrated significant impacts on quality of life: 

  • 74% reported that eczema negatively affected their mental health. 
  • 61% experienced sleep disruption 
  • 66% reported feeling lonely or socially isolated because of their condition 
  • 89% said eczema significantly reduced their overall quality of life. 

These findings reinforce what Allergy UK regularly hears from patients and families: the effects of eczema often extend into education, employment, relationships, emotional wellbeing and day-to-day activities. 

A shift towards holistic, person-centred care 

A key theme throughout the session was the need to move beyond treating visible symptoms and instead adopt a more holistic approach to care. 

Recommended principles included: 

  • Seeing the person behind the condition, not just the skin symptoms 
  • Encouraging open and supportive conversations 
  • Exploring patient concerns, beliefs and treatment fears 
  • Providing practical, day-to-day advice on treatment use and itch management 
  • Supporting lifestyle adaptations, including skincare routines and emollient use 
  • Addressing concerns around food allergy and other potential triggers where appropriate. 

The session highlighted several areas that are particularly relevant to Allergy UK, healthcare professionals, industry partners and policymakers including issues around patient education, mental health support and early intervention. 

For myself, the key takeaway from the conference is that Atopic Eczema is far more than a skin condition. Its impact extends across physical health, mental wellbeing, family life and economic productivity. The day reinforced in my mind the need for long-term, person-centred support, improved education and a greater recognition of the wider burden faced by individuals and families living with eczema.” 

*statistics from Beyond The Flare

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