BPSU study - Food protein induced enterocolitis syndrome (FPIES)
The British Paediatric Surveillance Unit (BPSU) are currently running a study on Food Protein Induced Enterocolitis Syndrome (FPIES), a rare delayed type of food allergy which leads to repeated vomiting and other gastrointestinal symptoms up to several hours after a problem food (or baby formula) is eaten. They are looking at the incidence, presentation and management of this condition.
There is very limited data on FPIES in the UK and this study is intended to improve our knowledge of the incidence, clinical presentation and management as well as improve awareness amongst paediatricians. This has the potential to benefit patients and families through quicker diagnosis and instigation of effective management of FPIES.
The study team are looking for patients who have their diagnosis made between Jan 2019 and Jan 2020 and had their first FPIES reaction when they were under 24 months.
If you think your child has a diagnosis of FPIES please click the link to complete and send the Consultant Notification of FPIES Case Form to your paediatric doctors as a means of encouraging them to report the case to the BPSU or find out more about the study here.